Good Day!
This was the first time that I am writing to all of you. I don’t know where should I start or should I say… I am too shy to say something. If you are asking me if I am OK, then “Yes! I am quite OK! – for now…”
I remember when I rushed to the hospital and my doctor said that I will need to undergone dialysis. I was fully devastated and I was thinking that was beginning of my end. I don’t know how to talk to God… I was shaking while I was in the Emergency Room. You don’t know what I am thinking? I do not know as well because I am feeling insane as my creatinine serum went up to 1,000+. I was in between life and death until I noticed I was in the Surgery Room waiting for my turn. Imagine, six-inched venous access sucked into my neck. I don’t feel any pain because of anesthesia but it kills my tenacity as time passes by.
There some syllogism that if you will undergo dialysis, you will meet your end as soonest as possible but we have God that knows all. By the time I was in the hemodialysis machine, I felt that I was drained. My edema limits my mobility.
A month later, when another fistula surgery initiated in a private hospital. I did not feel the pain but I was also praying to our Lord God to guide me and take care of me.
After a month or two, my IJ catheter was removed from my neck and my fistula is ready. The pain isn’t over my friend… Every hemodialysis session, two catheters were sucked into my veins. And every session, an average of 3 to 4 liters of water drained into my body. After my session, I feel so weak and dumb, like you care. But thanks to my Mom… she’s always on my side taking care of me.
No words can express the pain that we experience like we cannot able to sleep well because of shortening of breath or we are chilling at night. The struggle is real my friend… and I do not want you to feel the same because I care for you.
The physical pain does not end there. Why? Because we are also suffering financial pain. Every time that we have undergone dialysis, we will need to pay for the services rendered by the hemodialysis center as well as the professional fee for the nephrologist. We also need to pay for our dialyzer, IV Iron and Epoetin (when needed). But thanks to PCSO, I can get my guaranteed letter to acquire 8 injections of Epoetin Alfa.
Aside from that, we need to buy our maintenance medicine like Ferrous Sulfate, Calcium Carbonate, Sodium Bicarbonate, Renvela, etc. I am not putting myself down my friend, we still believe in God that this kind of sickness will come to pass.
We are not pleading for money, we are pleading for your prayers to guide us and heal us. My friend… please pray for us that we can overcome the pain that we have gone through by the name of our savior Jesus Christ.
To my fellow CKD warriors, please stay positive and every time we do, ask God for guidance. We can overcome this disease and stay strong and be positive. #LabanLang #CKDWarriors
Keep The Faith,
One of the CKD Warriors
